Q&A with Ari Avila | Arsht-Cannon Grantee Series

Q&A with Ari Avila, Spanish Outreach Director at the Down Syndrome Association of Delaware (Arsht-Cannon Grantee Series)

What is your role at the Down Syndrome Association of Delaware and what do you do?

My role at the Down Syndrome Association of Delaware as the Spanish Outreach Director is to provide all the resources, information and support needed for Spanish-speaking families with a loved one with Down syndrome. I build partnerships with local Spanish-speaking communities, leaders and organizations.

I serve as a visible, trusted representative between the association and families, gaining trust from the Hispanic community while helping leadership understand community needs. I also oversee Spanish-language content, including social media, newsletters, annual reports, and pamphlets.

What work does the DCF’s Arsht-Cannon Fund support at the Down Syndrome Association of Delaware?

The DCF’s Arsht-Cannon Fund supports the Down Syndrome Association of Delaware by funding my role and position as the Spanish Outreach Director.

Your son Eric was diagnosed with Down syndrome. How has this experience influenced you to help other families experiencing the diagnosis of Down syndrome?

When my son Eric was diagnosed with Down syndrome, it was a life-changing experience that brought a mix of emotions, questions, and uncertainty. Over time, it also became a source of strength, growth, and perspective. This journey has made me more empathetic and understanding toward other families receiving a similar diagnosis. I know firsthand how overwhelming it can feel in the beginning, so I try to offer reassurance, support, and hope to others going through that moment and in their own language.

It has also motivated me to share information and resources that I wish I had known earlier, helping families feel less alone and more prepared.

Eric is the reason I am passionate about my role. Through this work, I am able to support and connect with other Spanish-speaking families, ensuring they feel seen, heard, and supported in their journey. Most importantly, my experience with Eric has inspired me to advocate for inclusion, acceptance and better support systems for individuals with Down syndrome and their families. I want other families to know that they may have challenges — and some days can be very challenging — but life is also filled with joy, love, and meaningful milestones.

Are there any challenges in providing for the Hispanic/Latino community in your work beyond translation?

Yes, there are several challenges in providing for the Hispanic/Latino community beyond just translation. While language is important, it’s only one part of the bigger picture. One major challenge is cultural understanding and trust. Even when services are available in Spanish, some individuals may feel hesitant to seek help due to fear, past experiences, or uncertainty about systems. Building trust takes time and requires culturally respectful communication. Additionally, another challenge is access to information and resources.

Some families may not be aware of available services or may have difficulty navigating complex systems like healthcare, education, or social services. This can create barriers even when support exists. Finally, immigration-related concerns can impact how comfortable people feel engaging with institutions, even when services are safe and confidential.   

While you were born in Mexico, you have lived in your home state of Delaware for decades. What changes have you witnessed in the Hispanic/Latino community over that time?

Over the past several years, there have been many positive changes in the Hispanic/Latino community in Delaware, especially in areas like population growth, education, economic influence and cultural visibility. There has also been progress in economic contributions and business influence. Hispanic consumers and entrepreneurs are increasingly shaping Delaware’s economy and businesses are recognizing the importance of serving this community, which reflects greater economic participation and opportunity. There have been gradual improvements in civic engagement and representation. As the population grows, more Hispanic/Latino individuals are becoming more involved in voting, advocacy, and community leadership, helping their voices be heard.

The Arsht-Cannon Fund (ACF) was endowed by the Honorable Roxana Cannon Arsht, appointed as Delaware’s first female judge, and her husband, S. Samuel Arsht, a prominent corporate attorney and founding partner of Morris, Nichols, Arsht & Tunnell. Their mission for the ACF was to preserve, support, and defend the best interests of a civil society. Adrienne Arsht, their daughter, helped shape the Arsht-Cannon Fund’s early focus on serving Hispanic communities in Delaware through educational opportunities. Since 2004, the ACF has awarded over $12 million to 150 organizations, focusing on areas such as language learning, youth and arts programs, leadership development, Hispanic small business support, health education, and special initiatives. For more information, contact DCF Director of Community Partnerships and Hispanic Initiatives Dr. Jennifer Fuqua at [email protected].